A Proclamation on National Sickle Cell Awareness Month, 2023 | The White HouseSkip to contentYou have JavaScript disabled. Please enable JavaScript to use this feature.Toggle High Contrast Toggle High Contrast Toggle Large Font Size Toggle Large Font Size The White HouseThe White House The White House Home AdministrationPrioritiesThe RecordBriefing RoomEspañol InstagramOpens in a new windowFacebookOpens in a new windowTwitterOpens in a new windowYouTubeOpens in a new window Contact UsPrivacy PolicyCopyright PolicyAccessibility Statement MenuCloseTo search this site, enter a search term SearchMobile Menu OverlayAdministrationShow submenu for “Administration””President Joe BidenVice President Kamala HarrisFirst Lady Dr. Jill BidenSecond Gentleman Douglas EmhoffThe CabinetExecutive OfficesShow submenu for “Executive Offices””Council of Economic AdvisersCouncil on Environmental QualityDomestic Policy CouncilGender Policy CouncilNational Economic CouncilNational Security CouncilNational Space CouncilOffice of Intergovernmental AffairsOffice of Management and BudgetOffice of the National Cyber DirectorOffice of National Drug Control PolicyOffice of Public EngagementOffice of Science and Technology PolicyOffice of the United States Trade RepresentativeClimate Policy OfficePresidential Personnel OfficePrioritiesBriefing RoomThe White HouseShow submenu for “The White House””PresidentsFirst FamiliesThe GroundsOur GovernmentGet InvolvedShow submenu for “Get Involved””Write or Call The White HouseJoin UsWhite House FellowsWhite House Internship ProgramThe RecordDisclosuresEspañol Contact UsPrivacy PolicyCopyright PolicyAccessibility Statement InstagramOpens in a new windowFacebookOpens in a new windowTwitterOpens in a new windowYouTubeOpens in a new window The White House 1600 Pennsylvania Ave NW Washington, DC 20500 To search this site, enter a search term SearchAugust 31, 2023 A Proclamation on National Sickle Cell Awareness Month, 2023 Home Briefing Room Presidential Actions During National Sickle Cell Awareness Month, we recognize the perseverance and strength of the community of people living with this disease and recommit to developing more effective treatments.Approximately 100,000 Americans have Sickle Cell Disease (SCD) — a group of inherited red blood cell disorders that can cause acute, chronic pain and serious health complications, including infections, strokes, organ damage, vision problems, and serious fatigue. Living with SCD often means putting the goals and plans of everyday life on hold to accommodate the demands of the disease, enduring frequent unplanned hospital stays and struggling to pay for costly treatments not covered by insurance. There is no widely available cure for SCD. While bone marrow and stem cell transplants can work for some people with SCD, low donor availability and treatment-related complications put those options out of reach for many living with the disease. Although SCD affects people of all backgrounds, it disproportionately affects Black and Hispanic Americans. Combined with the documented disparities in treatment and care, people living with SCD often lack access to specialized care, treatment, and information about the disease, and they face barriers to receiving pain management and treatment support. That is why my Administration is working tirelessly to close these health disparities and help deliver the care SCD patients and their families deserve. We are working with State, territorial, and local governments, nonprofits, and private sector partners to make that happen. The Centers for Disease Control and Prevention’s Sickle Cell Data Collection program is gathering more comprehensive information on the experiences of SCD patients, which will inform new treatments and health care services. The Centers for Medicare & Medicaid Services is developing a Cell and Gene Therapy Access Model, which would help Medicaid beneficiaries gain access to potentially life-changing, high-cost specialty drugs for illnesses like sickle cell disease. The Health Resources and Services Administration is assisting with early identification and treatment of SCD and helping community-based organizations and clinics conduct testing, counseling, and education. The Food and Drug Administration has approved new drug therapies that help people with SCD manage their pain, and the National Institutes of Health (NIH) is funding clinical trials to test new advancements in the alleviation of chronic pain for those living with SCD. NIH is also researching possible personalized treatment approaches for SCD-associated pain. And through its “Cure Sickle Cell Initiative,” we are accelerating the development of effective and accessible genetic therapies that will help cure SCD once and for all. This month, we acknowledge all those living with SCD and the many health and medical professionals working to find new treatments and a cure for this disease. May we honor the progress we have made together and strengthen our resolve in finding a cure for SCD. NOW, THEREFORE, I, JOSEPH R. BIDEN JR., President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim September 2023 as National Sickle Cell Awareness Month. I call upon the people of the United States to learn more about Sickle Cell Disease and the progress we are making to reduce the burden of this disease on our fellow Americans. IN WITNESS WHEREOF, I have hereunto set my hand this thirty-first day of August, in the year of our Lord two thousand twenty-three, and of the Independence of the United States of America the two hundred and forty-eighth. JOSEPH R. BIDEN JR. Stay ConnectedSign UpEmail Address* RequiredZIP CodePlease leave blank.We'll be in touch with the latest information on how President Biden and his administration are working for the American people, as well as ways you can get involved and help our country build back better. Opt in to send and receive text messages from President Biden. 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